ARCHETYPE ID | openEHR-EHR-OBSERVATION.expanded_prostate_cancer_index_composite.v0 |
Concept | Expanded Prostate cancer Index Composite (EPIC) |
Description | Et spørreskjema som brukes for å vurdere den helserelaterte livskvaliteten hos pasienter med prostatakreft. |
Use | Brukes for å registere resultater fra det helserelaterte livkvalitetsspørreskjemaet for pasienter med prostatakreft. Denne arketypen inneholder alle 50 elementene i det fulle EPIC-spørreskjemaet, og kan justeres til EPIC Short Form (EPIC-26) i templat. Se eksempeltemplat i CKM'ens "Resource Centre". Selv om spørsmålsnumrene er forskjellige mellom det fulle EPIC-50-spørreskjemaet og det nedkortede EPIC-26-spørreskjemaet, deler de det samme unike 'Item number', som finnes i hvert elements 'Annotations', i Key attribute 'epic_item_id'. Dette, sammen med de ekstra 'Annotation'-nøklene 'domain', 'subscale' og 'subscale2', lar dataforbrukere bruke arketypen som en oppslagsstruktur for å orkestrere dataene for videre analyse. Dette kan være spesielt nyttig for å utføre skåring som beskrevet i "Scoring Instructions for the Expanded Prostate cancer Index Composite" og "Scoring Instructions for the Expanded Prostate cancer Index Composite Short Form". I tillegg har hvert element identifisert det nummeret hvert spørsmål vises som i papirskjemaet som Keys in Annotation. Annotatoin Keys er som følger: - "epic_item_id" identifiserer det unike 'Item number' som er felles mellom EPIC 50 og EPIC Short Form. - "domain" identifiserer hvilket domene hvert spørsmål hører til: 'Urinary', 'Bowel', 'Sexual' og 'Hormonal'. - "subscale" indikerer hvilket underdomene ('Function' eller 'Bother') som er assosiert med hvert spørsmål, og er navnet på formatet [domain name + subscale]. - "subscale2" indikerer hvilket underdomene ('Incontinence' eller 'Irritative/Obstructive') som er assosiert med hvert spørsmål innenfor domenet 'Urinary'. - "original_form_number" identifiserer hvilket nummer spørsmålet har i den originale fulle Expanded Prostate cancer Index Composite. - "short_form_number" identifiserer hvilket nummer spørsmålet har i Expanded Prostate Cancer Index Composite Short Form (EPIC-26) version. |
Purpose | For å registere resultater fra det helserelaterte livkvalitetsspørreskjemaet for pasienter med prostatakreft. |
References | Expanded Prostate cancer Index Composite (EPIC), Utkast arketype [Internet]. openEHR Foundation, OpenEHR International Clinical Knowledge Manager [sitert: 2024-10-28]. Hentet fra: https://ckm.openehr.org/ckm/archetypes/1013.1.7439 Wei JT, Dunn RL, Litwin MS, Sandler HM, Sanda MG. Development and validation of the expanded prostate cancer index composite (EPIC) for comprehensive assessment of health-related quality of life in men with prostate cancer. Urology. 2000 Dec 20;56(6):899-905. doi: 10.1016/s0090-4295(00)00858-x. PMID: 11113727. Scoring Instructions for the Expanded Prostate cancer Index Composite (EPIC); https://medicine.umich.edu/sites/default/files/content/downloads/EPIC-Scoring-2.2002_0.pdf Skolarus TA, Dunn RL, Sanda MG, Chang P, Greenfield TK, Litwin MS, Wei JT; PROSTQA Consortium. Minimally important difference for the Expanded Prostate Cancer Index Composite Short Form. Urology. 2015 Jan;85(1):101-5. doi: 10.1016/j.urology.2014.08.044. PMID: 25530370; PMCID: PMC4274392. Scoring Instructions for the Expanded Prostate cancer Index Composite Short Form (EPIC-26). https://medicine.umich.edu/sites/default/files/content/downloads/Scoring%20Instructions%20for%20the%20EPIC%2026.pdf |
Copyright | © Nasjonal IKT HF |
Authors | Forfatternavn: Vebjørn Arntzen Organisasjon: Oslo University Hospital, Norway E-post: varntzen@ous-hf.no Opprinnelig skrevet dato: 2024-08-26 |
Other Details Language | Forfatternavn: Vebjørn Arntzen Organisasjon: Oslo University Hospital, Norway E-post: varntzen@ous-hf.no Opprinnelig skrevet dato: 2024-08-26 |
OtherDetails Language Independent | {licence=This work is licensed under the Creative Commons Attribution-ShareAlike 4.0 International License. To view a copy of this license, visit http://creativecommons.org/licenses/by-sa/4.0/., custodian_organisation=Nasjonal IKT, references=Expanded Prostate cancer Index Composite (EPIC), Utkast arketype [Internet]. openEHR Foundation, OpenEHR International Clinical Knowledge Manager [sitert: 2024-10-28]. Hentet fra: https://ckm.openehr.org/ckm/archetypes/1013.1.7439 Wei JT, Dunn RL, Litwin MS, Sandler HM, Sanda MG. Development and validation of the expanded prostate cancer index composite (EPIC) for comprehensive assessment of health-related quality of life in men with prostate cancer. Urology. 2000 Dec 20;56(6):899-905. doi: 10.1016/s0090-4295(00)00858-x. PMID: 11113727. Scoring Instructions for the Expanded Prostate cancer Index Composite (EPIC); https://medicine.umich.edu/sites/default/files/content/downloads/EPIC-Scoring-2.2002_0.pdf Skolarus TA, Dunn RL, Sanda MG, Chang P, Greenfield TK, Litwin MS, Wei JT; PROSTQA Consortium. Minimally important difference for the Expanded Prostate Cancer Index Composite Short Form. Urology. 2015 Jan;85(1):101-5. doi: 10.1016/j.urology.2014.08.044. PMID: 25530370; PMCID: PMC4274392. Scoring Instructions for the Expanded Prostate cancer Index Composite Short Form (EPIC-26). https://medicine.umich.edu/sites/default/files/content/downloads/Scoring%20Instructions%20for%20the%20EPIC%2026.pdf, original_namespace=no.nasjonalikt, original_publisher=Nasjonal IKT, custodian_namespace=no.nasjonalikt, MD5-CAM-1.0.1=82F4662C4A21491004E3D763C1EE79B0, build_uid=c7428f14-aad9-4f6f-88bc-edb01ea1b065, revision=0.0.1-alpha} |
Keywords | prostatakreft, livskvalitet, QOL, PROM, EPIC-26 |
Lifecycle | in_development |
UID | 54b18e57-64b2-4c56-86b7-724312117233 |
Language used | nb |
Citeable Identifier | 1078.36.3184 |
Revision Number | 0.0.1-alpha |
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uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: Ikke noe problem 2: Svært lite problem 3: Lite problem 4: Middels problem 5: Stort problem , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0321], code=at0321, itemType=CLUSTER, level=4, text=Hvordan vil du gradere følgende i løpet av de siste 4 ukene?, description=Et overskriftsspørsmål der svar bare skal registreres i elementer som ligger inni Clusteret., comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=1..*, cardinalityText= , subCardinalityFormal=null, subCardinalityText=null, dataType=CLUSTER, bindings=null, values=, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0321]/items[at0216], code=at0216, itemType=ELEMENT, level=5, text=*Level of sexual desire(en), description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: *Very Poor to None(en) 2: *Poor(en) 3: *Fair(en) 4: *Good(en) 5: *Very Good(en) , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0321]/items[at0095], code=at0095, itemType=ELEMENT, level=5, text=Din evne til å få ereksjon (reisning), description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: Meget dårlig/fraværende 2: Dårlig 3: Rimelig 4: God 5: Veldig bra , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0321]/items[at0097], code=at0097, itemType=ELEMENT, level=5, text=Din evne til å oppnå orgasme (klimaks), description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: Meget dårlig/fraværende 2: Dårlig 3: Rimelig 4: God 5: Veldig bra , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0108], code=at0108, itemType=ELEMENT, level=4, text=Hvordan vil du beskrive kvaliteten av ereksjonene dine i løpet av de siste 4 ukene?, description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: Ingen ereksjon 2: Ikke stiv nok for noen seksuell aktivitet 3: Bare stiv nok til onani og forspill 4: Stiv nok for samleie , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0113], code=at0113, itemType=ELEMENT, level=4, text=Hvordan vil du beskrive hyppigheten av ereksjonene dine i løpet av de siste 4 ukene?, description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: Jeg hadde aldri ereksjon når jeg ønsket det 2: Jeg hadde ereksjon sjeldnere enn halvparten av de gangene jeg ønsket det 3: Jeg hadde ereksjon omtrent halvparten av de gangene jeg ønsket det 4: Jeg hadde ereksjon oftere enn halvparten av de gangene jeg ønsket det 5: Jeg hadde alltid ereksjon når jeg 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cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: *Not at all(en) 2: *Less than once a week(en) 3: *About once a week(en) 4: *Several times a week(en) 5: *Daily(en) , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0247], code=at0247, itemType=ELEMENT, level=4, text=*During the last 4 weeks, how often did you have sexual intercourse?(en), description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: *Not at all(en) 2: *Less than once a week(en) 3: *About once a week(en) 4: *Several times a week(en) 5: *Daily(en) , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0119], code=at0119, itemType=ELEMENT, level=4, text=Alt i alt, hvordan vil du anse din evne til å fungere seksuelt i løpet av de siste 4 ukene?, description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: Svært dårlig 2: Dårlig 3: Rimelig 4: Bra 5: Veldig bra , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0322], code=at0322, itemType=CLUSTER, level=4, text=*How big a problem during the last 4 weeks, if any, has each of the following been for you?(en), description=*A header question, with answers to be recorded in the elements within the Cluster only.(en), comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=1..*, cardinalityText= , subCardinalityFormal=null, subCardinalityText=null, dataType=CLUSTER, bindings=null, values=, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0322]/items[at0259], code=at0259, itemType=ELEMENT, level=5, text=*Your level of sexual desire(en), description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: *No problem(en) 2: *Very small problem(en) 3: *Small problem(en) 4: *Moderate problem(en) 5: *Big problem(en) , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0322]/items[at0253], code=at0253, itemType=ELEMENT, level=5, text=*Your ability to have an erection(en), description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: *No problem(en) 2: *Very small problem(en) 3: *Small problem(en) 4: *Moderate problem(en) 5: *Big problem(en) , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0322]/items[at0265], code=at0265, itemType=ELEMENT, level=5, text=*Your ability to reach an orgasm(en), description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: *No problem(en) 2: *Very small problem(en) 3: *Small problem(en) 4: *Moderate problem(en) 5: *Big problem(en) , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0125], code=at0125, itemType=ELEMENT, level=4, text=Alt i alt, hvor stort problem har seksualfunksjonen eller mangelen på slik funksjon vært for deg i løpet av de siste 4 ukene?, description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: Ikke noe problem 2: Svært lite problem 3: Lite problem 4: Middels problem 5: Stort problem , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0271], code=at0271, itemType=ELEMENT, level=4, text=*Over the last 4 weeks, how often have you experienced hot flashes?(en), description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: *More than once a day(en) 2: *About once a day(en) 3: *More than once a week(en) 4: *About once a week(en) 5: *Rarely or never(en) , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0277], code=at0277, itemType=ELEMENT, level=4, text=*How often have you had breast tenderness during the last 4 weeks?(en), description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: *More than once a day(en) 2: *About once a day(en) 3: *More than once a week(en) 4: *About once a week(en) 5: *Rarely or never(en) , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0283], code=at0283, itemType=ELEMENT, level=4, text=*During the last 4 weeks, how often have you felt depressed?(en), description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: *More than once a day(en) 2: *About once a day(en) 3: *More than once a week(en) 4: *About once a week(en) 5: *Rarely or never(en) , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0289], code=at0289, itemType=ELEMENT, level=4, text=*During the last 4 weeks, how often have you felt a lack of energy?(en), description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: *More than once a day(en) 2: *About once a day(en) 3: *More than once a week(en) 4: *About once a week(en) 5: *Rarely or never(en) , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0295], code=at0295, itemType=ELEMENT, level=4, text=*How much change in your weight have you experienced during the last 4 weeks, if any?(en), description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: *Gained 10 pounds or more(en) 2: *Gained less than 10 pounds(en) 3: *No change in weight(en) 4: *Lost less than 10 pounds(en) 5: *Lost 10 pounds or more(en) , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0323], code=at0323, itemType=CLUSTER, level=4, text=Hvor stort problem, om noe, har hvert av de følgende vært for deg de siste 4 ukene?, description=Et overskriftsspørsmål der svar bare skal registreres i elementer som ligger inni Clusteret., comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=1..*, cardinalityText= , subCardinalityFormal=null, subCardinalityText=null, dataType=CLUSTER, bindings=null, values=, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0323]/items[at0132], code=at0132, itemType=ELEMENT, level=5, text=Hetetokter, description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Ikke noe problem 1: Veldig lite problem 2: Lite problem 3: Moderat problem 4: Stort problem , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0323]/items[at0138], code=at0138, itemType=ELEMENT, level=5, text=Ømme/svulne bryster/brystvorter, description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Ikke noe problem 1: Veldig lite problem 2: Lite problem 3: Moderat problem 4: Stort problem , extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0313]/data[at0003]/items[at0323]/items[at0301], code=at0301, itemType=ELEMENT, level=5, text=*Loss of body hair(en), description=, comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: *No Problem(en) 1: *Very Small Problem(en) 2: *Small Problem(en) 3: *Moderate Problem(en) 4: *Big Problem(en) , extendedValues=null], ResourceSimplifiedHierarchyItem 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subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=1: *Extremely dissatified(en) 2: *Dissatisfied(en) 3: *Uncertain(en) 4: *Satisfied(en) 5: *Extremely satisfied(en) , extendedValues=null]], capabilities=[]}, topLevelItems={protocol=ResourceSimplifiedHierarchyItem [path=ROOT_/protocol[at0314], code=at0314, itemType=ITEM_TREE, level=0, text=null, description=null, comment=null, uncommonOntologyItems=null, occurencesFormal=1..1, occurencesText=Obligatorisk, cardinalityFormal=0..1, cardinalityText=valgfritt, subCardinalityFormal=null, subCardinalityText=null, dataType=ITEM_TREE, bindings=null, values=null, extendedValues=null], data=ResourceSimplifiedHierarchyItem [path=ROOT_/data[at0001]/events[at0313]/data[at0003], code=at0003, itemType=ITEM_TREE, level=2, text=null, description=null, comment=null, uncommonOntologyItems=null, occurencesFormal=1..1, occurencesText=Obligatorisk, cardinalityFormal=0..1, cardinalityText=valgfritt, subCardinalityFormal=0..*, subCardinalityText=Minimum 0 oppføringer , dataType=ITEM_TREE, bindings=null, values=null, extendedValues=null]}, addHierarchyItemsTo=protocol, currentHierarchyItemsForAdding=[], minIndents={}, termBindingRetrievalErrorMessage=null] |