ARCHETYPE FACT-Hep (openEHR-EHR-OBSERVATION.fact_g-Hep.v0)

ARCHETYPE IDopenEHR-EHR-OBSERVATION.fact_g-Hep.v0
ConceptFACT-Hep
DescriptionFunctional Assessment of Cancer Therapy-General, a 45-Item measure of physical, role, emotional, and social/family functioning, as well additional concern and global quality of life in patients with hepatobiliary cancer.
UseUse to record the results for each component parameter and their total sum for the FACT-Hep measure. Several of the score item response scores are reversed on scoring, to convert a low response on a negatively phrased question to a high quality of life score, or opposite. Reversal is performed by subtracting the item response from 4. The subscale scores are calculated by summing the item scores after reversing the relevant item responses, multiplying by the number of items in the subscale, and dividing by the number of items answered. While openEHR archetypes are all freely available under an open license, the specific content of this archetype is copyright protected. Any use of this archetype within implementations must be in compliance with the terms established by the copyright owners. Copyright statement: © Copyright 1987, 1997 David Cella, Ph.D Terms and conditions for use: https://www.facit.org/FACITOrg/AboutUs/Copyright
MisuseNot to be used for recording any FACT measure other than FACT-Hep. Use the parent or a sibling of this archetype for this purpose.
PurposeTo record the results for each component parameter and their total sum for the FACT-Hep measure.
ReferencesCella D. Facit.org Questionnaires. [Internet]. FACIT; 2020. Available from: https://www.facit.org/FACITOrg/Questionnaires.
Copyright© openEHR Foundation
AuthorsForfatternavn: Vanessa Pereira
Organisasjon: Pathfinder - Better
E-post: vanessa.pereira@better.care
Opprinnelig skrevet dato: 2020-04-09
Other Details LanguageForfatternavn: Vanessa Pereira
Organisasjon: Pathfinder - Better
E-post: vanessa.pereira@better.care
Opprinnelig skrevet dato: 2020-04-09
OtherDetails Language Independent{licence=This work is licensed under the Creative Commons Attribution-ShareAlike 4.0 International License. To view a copy of this license, visit http://creativecommons.org/licenses/by-sa/4.0/., custodian_organisation=openEHR Foundation, references=Cella D. Facit.org Questionnaires. [Internet]. FACIT; 2020. Available from: https://www.facit.org/FACITOrg/Questionnaires., original_namespace=org.openehr, original_publisher=openEHR Foundation, custodian_namespace=org.openehr, MD5-CAM-1.0.1=a798793db044034afa63f7c35a00bdf0, build_uid=ec90cdfc-3750-4f72-a81f-c8de20a21ad4, revision=0.0.1-alpha}
KeywordsFACT, cancer, QOL, quality of life, assessment,liver, bile duct, pancreas
Lifecyclein_development
UID343a9207-8508-408a-9b8c-52f1de126b98
Language useden
Citeable Identifier1078.36.2342
Revision Number0.0.1-alpha
AllArchetype [runtimeNameConstraintForConceptName=null, archetypeConceptBinding=null, archetypeConceptDescription=Functional Assessment of Cancer Therapy-General, a 45-Item measure of physical, role, emotional, and social/family functioning, as well additional concern and global quality of life in patients with hepatobiliary cancer., archetypeConceptComment=null, otherContributors=Elodie Léost, Medtronic, France
Silje Ljosland Bakke, Helse Vest IKT AS, Norway, originalLanguage=en, translators=, subjectOfData=ubegrenset, archetypeTranslationTree=null, topLevelToAshis={data=[ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0004], code=at0004, itemType=ELEMENT, level=4, text=Lack of energy, description=I have a lack of energy, comment=Section: Physical well-being., uncommonOntologyItems={Subscale=PWB, Item_code=GP1, Question_number=1}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0005], code=at0005, itemType=ELEMENT, level=4, text=Nausea, description=I have nausea, comment=Section: Physical well-being., uncommonOntologyItems={Subscale=PWB, Item_code=GP2, Question_number=2}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0006], code=at0006, itemType=ELEMENT, level=4, text=Trouble on meeting family needs due to physical condition, description=Because of my physical condition, I have trouble meeting the needs of my family, comment=Section: Physical well-being., uncommonOntologyItems={Subscale=PWB, Item_code=GP3, Question_number=3}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0007], code=at0007, itemType=ELEMENT, level=4, text=Pain, description=I have pain, comment=Section: Physical well-being., uncommonOntologyItems={Subscale=PWB, Item_code=GP4, Question_number=4}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0008], code=at0008, itemType=ELEMENT, level=4, text=Bothered by side effects of treatment, description=I am bothered by side effects of treatment, comment=Section: Physical well-being., uncommonOntologyItems={Subscale=PWB, Item_code=GP5, Question_number=5}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0009], code=at0009, itemType=ELEMENT, level=4, text=Felt ill, description=I feel ill, comment=Section: Physical well-being., uncommonOntologyItems={Subscale=PWB, Item_code=GP6, Question_number=6}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0010], code=at0010, itemType=ELEMENT, level=4, text=Forced to spend time in bed, description=I am forced to spend time in bed, comment=Section: Physical well-being., uncommonOntologyItems={Subscale=PWB, Item_code=GP7, Question_number=7}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0061], code=at0061, itemType=ELEMENT, level=4, text=Physical well-being subscale score, description=The score for the physical well-being subscale., comment=All items are reversed for scoring., uncommonOntologyItems={Subscale=PWB}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=DV_COUNT, bindings=null, values=min: >=0; max: <=28

, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0011], code=at0011, itemType=ELEMENT, level=4, text=Felt close to friends, description=I feel close to my friends, comment=Section: Social/Family well-being., uncommonOntologyItems={Subscale=SWB, Item_code=GS1, Question_number=8}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0012], code=at0012, itemType=ELEMENT, level=4, text=Got emotional support from family, description=I get emotional support from my family, comment=Section: Social/Family well-being., uncommonOntologyItems={Subscale=SWB, Item_code=GS2, Question_number=9}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0013], code=at0013, itemType=ELEMENT, level=4, text=Got support from friends, description=I get support from my friends, comment=Section: Social/Family well-being., uncommonOntologyItems={Subscale=SWB, Item_code=GS3, Question_number=10}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0014], code=at0014, itemType=ELEMENT, level=4, text=Family has accepted illness, description=My family has accepted my illness, comment=Section: Social/Family well-being., uncommonOntologyItems={Subscale=SWB, Item_code=GS4, Question_number=11}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0015], code=at0015, itemType=ELEMENT, level=4, text=Satisfied with family communication about illness, description=I am satisfied with family communication about my illness, comment=Section: Social/Family well-being., uncommonOntologyItems={Subscale=SWB, Item_code=GS5, Question_number=12}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0016], code=at0016, itemType=ELEMENT, level=4, text=Felt close to partner, description=I feel close to my partner (or the person who is my main support), comment=Section: Social/Family well-being., uncommonOntologyItems={Subscale=SWB, Item_code=GS6, Question_number=13}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0017], code=at0017, itemType=ELEMENT, level=4, text=Satisfied with sex life, description=I am satisfied with my sex life, comment=Section: Social/Family well-being., uncommonOntologyItems={Subscale=SWB, Item_code=GS7, Question_number=14}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0062], code=at0062, itemType=ELEMENT, level=4, text=Social/family well-being subscale score, description=The score for the social/family well-being subscale., comment=No items are reversed for scoring., uncommonOntologyItems={Subscale=SWB}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=DV_COUNT, bindings=null, values=min: >=0; max: <=28

, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0018], code=at0018, itemType=ELEMENT, level=4, text=Felt sad, description=I feel sad, comment=Section: Emotional well-being., uncommonOntologyItems={Subscale=EWB, Item_code=GE1, Question_number=15}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0019], code=at0019, itemType=ELEMENT, level=4, text=Satisfied with coping with illness, description=I am satisfied with how I am coping with my illness, comment=Section: Emotional well-being., uncommonOntologyItems={Subscale=EWB, Item_code=GE2, Question_number=16}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0020], code=at0020, itemType=ELEMENT, level=4, text=Losing hope to fight against illness, description=I am losing hope in the fight against my illness, comment=Section: Emotional well-being., uncommonOntologyItems={Subscale=EWB, Item_code=GE3, Question_number=17}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0021], code=at0021, itemType=ELEMENT, level=4, text=Felt nervous, description=I feel nervous, comment=Section: Emotional well-being., uncommonOntologyItems={Subscale=EWB, Item_code=GE4, Question_number=18}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0022], code=at0022, itemType=ELEMENT, level=4, text=Worried about dying, description=I worry about dying, comment=Section: Emotional well-being., uncommonOntologyItems={Subscale=EWB, Item_code=GE5, Question_number=19}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0023], code=at0023, itemType=ELEMENT, level=4, text=Worried that condition will get worse, description=I worry that my condition will get worse, comment=Section: Emotional well-being., uncommonOntologyItems={Subscale=EWB, Item_code=GE6, Question_number=20}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0063], code=at0063, itemType=ELEMENT, level=4, text=Emotional well-being subscale score, description=The score for the emotional well-being subscale., comment=All items except 'Satisfied with coping with illness' are reversed for scoring., uncommonOntologyItems={Subscale=EWB}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=DV_COUNT, bindings=null, values=min: >=0; max: <=24

, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0024], code=at0024, itemType=ELEMENT, level=4, text=Able to work (including work at home), description=I am able to work (include work at home), comment=Section: Functional well-being., uncommonOntologyItems={Subscale=FWB, Item_code=GF1, Question_number=21}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0025], code=at0025, itemType=ELEMENT, level=4, text=Felt that work was fulfilling, description=My work (include work at home) is fulfilling, comment=Section: Functional well-being., uncommonOntologyItems={Subscale=FWB, Item_code=GF2, Question_number=22}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0026], code=at0026, itemType=ELEMENT, level=4, text=Able to enjoy life, description=I am able to enjoy life, comment=Section: Functional well-being., uncommonOntologyItems={Subscale=FWB, Item_code=GF3, Question_number=23}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0027], code=at0027, itemType=ELEMENT, level=4, text=Accepted illness, description=I have accepted my illness, comment=Section: Functional well-being., uncommonOntologyItems={Subscale=FWB, Item_code=GF4, Question_number=24}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0028], code=at0028, itemType=ELEMENT, level=4, text=Slept well, description=I am sleeping well, comment=Section: Functional well-being., uncommonOntologyItems={Subscale=FWB, Item_code=GF5, Question_number=25}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0029], code=at0029, itemType=ELEMENT, level=4, text=Enjoyed things usually done for fun, description=I am enjoying the things I usually do for fun, comment=Section: Functional well-being., uncommonOntologyItems={Subscale=FWB, Item_code=GF6, Question_number=26}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0030], code=at0030, itemType=ELEMENT, level=4, text=Content with quality of life right now, description=I am content with the quality of my life right now, comment=Section: Functional well-being., uncommonOntologyItems={Subscale=FWB, Item_code=GF7, Question_number=27}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0064], code=at0064, itemType=ELEMENT, level=4, text=Functional well-being subscale score, description=The score for the functional well-being subscale., comment=No items are reversed for scoring., uncommonOntologyItems={Subscale=FWB}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=DV_COUNT, bindings=null, values=min: >=0; max: <=28

, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.1], code=at0.1, itemType=ELEMENT, level=4, text=Swelling or cramps in stomach area, description=I have swelling or cramps in my stomach area, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=C1, Question_number=28}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.3], code=at0.3, itemType=ELEMENT, level=4, text=Losing weight, description=I am losing weight, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=C2, Question_number=29}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.4], code=at0.4, itemType=ELEMENT, level=4, text=Control of bowels, description=I have control of my bowels, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=C3, Question_number=30}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.5], code=at0.5, itemType=ELEMENT, level=4, text=Could digest food well, description=I can digest my food well, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=C4, Question_number=31}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.6], code=at0.6, itemType=ELEMENT, level=4, text=Diarrhea, description=I have diarrhea (diarrhoea), comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=C5, Question_number=32}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.7], code=at0.7, itemType=ELEMENT, level=4, text=Good appetite, description=I have a good appetite, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=C6, Question_number=33}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.8], code=at0.8, itemType=ELEMENT, level=4, text=Unhappy about appearance change, description=I am unhappy about a change in my appearance, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=Hep1, Question_number=34}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.9], code=at0.9, itemType=ELEMENT, level=4, text=Back pain, description=I have pain in my back, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=CNS7, Question_number=35}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.10], code=at0.10, itemType=ELEMENT, level=4, text=Bothered by constipation, description=I am bothered by constipation, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=Cx6, Question_number=36}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.11], code=at0.11, itemType=ELEMENT, level=4, text=Felt fatigued, description=I feel fatigued, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=Hl7, Question_number=37}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.12], code=at0.12, itemType=ELEMENT, level=4, text=Able to do usual activities, description=I am able to do my usual activities, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=An7, Question_number=38}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.13], code=at0.13, itemType=ELEMENT, level=4, text=Bothered by jaundice, description=I am bothered by jaundice or yellow color to my skin, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=Hep2, Question_number=39}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.14], code=at0.14, itemType=ELEMENT, level=4, text=Fever, description=I have had fevers (episodes of high body temperature), comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=Hep3, Question_number=40}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.15], code=at0.15, itemType=ELEMENT, level=4, text=Itching, description=I have had itching, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=Hep4, Question_number=41}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.16], code=at0.16, itemType=ELEMENT, level=4, text=Changes on food taste, description=I have had a change in the way food tastes, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=Hep5, Question_number=42}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.17], code=at0.17, itemType=ELEMENT, level=4, text=Chills, description=I have had chills, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=Hep6, Question_number=43}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.18], code=at0.18, itemType=ELEMENT, level=4, text=Dry mouth, description=My mouth is dry, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=HN2, Question_number=44}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.19], code=at0.19, itemType=ELEMENT, level=4, text=Discomfort or pain in stomach area, description=I have discomfort or pain in my stomach area, comment=Section: Additional concerns., uncommonOntologyItems={Subscale=HCS, Item_code=Hep8, Question_number=45}, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=C_DV_ORDINAL, bindings=null, values=0: Not at all []
1: A little bit []
2: Somewhat []
3: Quite a bit []
4: Very much []
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.2], code=at0.2, itemType=ELEMENT, level=4, text=Hepatobiliary cancer subscale score, description=The score for the hepatobiliary cancer subscale., comment=All items are reversed except "I have control of my bowels", "I can digest my food well", "I have a good appetite" and "I am able to do my usual activities"., uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=DV_COUNT, bindings=null, values=min: >=0; max: <=72

, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.20], code=at0.20, itemType=ELEMENT, level=4, text=FACT-Hep Trial Outcome Index (TOI), description=Total score from from the PWB, FWB and HCS subscales., comment=Scored by summing the PWB, FWB and HCS subscale scores., uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=DV_COUNT, bindings=null, values=min: >=0; max: <=128

, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0055], code=at0055, itemType=ELEMENT, level=4, text=FACT-G total score, description=Total score from from the PWB, SWB, EWB and FWB subscales. The higher the score, the better the QOL., comment=Scored by summing the PWB, SWB, EWB and FWB subscale scores., uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=DV_COUNT, bindings=null, values=min: >=0; max: <=108

, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002]/data[at0003]/items[at0.21], code=at0.21, itemType=ELEMENT, level=4, text=FACT-Hep total score, description=Total score from from all the subscales., comment=Scored by summing the PWB, SWB, EWB, FWB and HCS subscale scores., uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=DV_COUNT, bindings=null, values=min: >=0; max: <=180

, extendedValues=null]], identities=[], content=[], context=[], contacts=[], relationships=[], details=[], items=[], description=[], ism_transition=[], state=[], provider=[], source=[], activities=[], capabilities=[], target=[], credentials=[], protocol=[ResourceSimplifiedHierarchyItem [path=/protocol[at0049]/items[at0051], code=at0051, itemType=SLOT, level=2, text=Extension, description=Additional information required to extend the model with local content or to align with other reference models or formalisms., comment=For example: local information requirements; or additional metadata to align with FHIR., uncommonOntologyItems=null, occurencesFormal=0..*, occurencesText=Valgfritt, gjentagende, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=CLUSTER, bindings=null, values=Inkluder:
Alle ikke eksplisitt ekskluderte arketyper, extendedValues=null]], other_participations=[], events=[ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0002], code=at0002, itemType=INTERVAL_EVENT, level=2, text=The past 7 days, description=The standard "past 7 days" recording of FACT scores., comment=null, uncommonOntologyItems=null, occurencesFormal=0..1, occurencesText=Valgfritt, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=INTERVAL_EVENT, bindings=null, values=Intervall-vidde: 7 dager
, extendedValues=null], ResourceSimplifiedHierarchyItem [path=/data[at0001]/events[at0065], code=at0065, itemType=EVENT, level=2, text=Any event, description=Default, unspecified point in time or interval event which may be explicitly defined in a template or at run-time., comment=null, uncommonOntologyItems=null, occurencesFormal=0..*, occurencesText=Valgfritt, gjentagende, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=EVENT, bindings=null, values=null, extendedValues=null]]}, topLevelItems={data=ResourceSimplifiedHierarchyItem [path=ROOT_/data[at0001]/events[at0002]/data[at0003], code=at0003, itemType=ITEM_TREE, level=2, text=null, description=null, comment=null, uncommonOntologyItems=null, occurencesFormal=1..1, occurencesText=Obligatorisk, cardinalityFormal=0..1, cardinalityText=valgfritt, subCardinalityFormal=0..*, subCardinalityText=Minimum 0 oppføringer, dataType=ITEM_TREE, bindings=null, values=null, extendedValues=null], protocol=ResourceSimplifiedHierarchyItem [path=ROOT_/protocol[at0049], code=at0049, itemType=ITEM_TREE, level=0, text=null, description=null, comment=null, uncommonOntologyItems=null, occurencesFormal=1..1, occurencesText=Obligatorisk, cardinalityFormal=0..1, cardinalityText=valgfritt, subCardinalityFormal=0..*, subCardinalityText=Minimum 0 oppføringer, dataType=ITEM_TREE, bindings=null, values=null, extendedValues=null]}, addHierarchyItemsTo=protocol, currentHierarchyItemsForAdding=[ResourceSimplifiedHierarchyItem [path=/protocol[at0049]/items[at0051], code=at0051, itemType=SLOT, level=2, text=Extension, description=Additional information required to extend the model with local content or to align with other reference models or formalisms., comment=For example: local information requirements; or additional metadata to align with FHIR., uncommonOntologyItems=null, occurencesFormal=0..*, occurencesText=Valgfritt, gjentagende, cardinalityFormal=null, cardinalityText=null, subCardinalityFormal=null, subCardinalityText=null, dataType=CLUSTER, bindings=null, values=Inkluder:
Alle ikke eksplisitt ekskluderte arketyper, extendedValues=null]], minIndents={}, termBindingRetrievalErrorMessage=null]